Alpha-gal Case Definition Working Group

Sample wording stolen from histo and blasto case definitions

HIstoplasmosis and Blastomycosis are two conditions which are NOT nationally notifiable; however some states have chosen to make them reportable within their jurisdictions, but these states were all using different case definitions, making it impossible to compare data between and among states. Working groups were successful at creating and getting approval for standardized case definitions for these two conditions in the past five years.

From histo:
To address the substantial variability in how states conduct surveillance on histoplasmosis, a workgroup was formed to develop a consensus case definition. Participants in this workgroup represented state health departments from ten states (Arkansas, Illinois, Indiana, Kentucky, Michigan, Mississippi, Nebraska, Ohio, Tennessee, and Wisconsin), CDC’s Mycotic Diseases Branch, and the academic community. A consensus surveillance definition for histoplasmosis would allow for the comparison of incidence of histoplasmosis cases between states and aid in the investigation of disease trends. 

From blasto: 
 In 2019, blastomycosis is reportable in Arkansas, Louisiana, Michigan, Minnesota, and Wisconsin (14). The case definitions vary by state, and although most include broadly similar criteria, the differences limit data comparability. Additionally, the jurisdictions collect different laboratory, clinical, and epidemiological data. Cases occurring in states where blastomycosis is emerging, such as New York, should be reported to public health departments. Outside of these states, cases may be reported when an unusual cluster of infections is identified (15). Standardized public health surveillance can improve our ability to detect temporal trends, geographic hotspots, and emerging risk factors with an aim toward improving patient and provider awareness, clinical diagnosis, and prevention recommendations. The blastomycosis consensus case definition was developed in response to a common desire of states with reporting, states investigating clusters, and CDC for more robust and impactful surveillance for this disease. This case definition is intended for the standardized reporting of cases and is not intended for clinical decision making. It will allow for collection and comparison of standardized data, incidence rates, and disease trends in states conducting blastomycosis surveillance or investigations. 

Comments & Events

Kristen Nichols Heitman, CDC
I like a lot about both of these paragraphs and think parts of them could we repurposed for our statement of the problem paragraph to show the interest expressed by all involved in the working group.
Julia Murphy
Naomi Drexler
I agree with Laura and Kristen. I personally like how concise the last sentence of the histo statement is and feel it could be easily adapted/swapped out for the last sentence of statement of the problem: "A consensus surveillance definition for AGS would allow for the comparison of AGS cases between states and aid in the investigation of disease trends."