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CSTE IRB Workgroup

Kevin Gibbs, IT Operations Manager at CSTEAmanda Masters, Director of Workforce Development at CSTEAl DemariaJennifer Lemmings, CSTEErica Runningdeer, ILJessica Arrazola, Director of Educational Strategy at CSTEJeff Engel, Senior Advisor for COVID-19 at CSTERita Altamore, EpidemiologistLesliann HelmusRachel StricofAmanda Payne, Senior Consultant at J Michael ConsultingKatie BrownAnne KjemtrupJen FiddnerJulius Tonzel, Epidemiologist at LA DOH, OPH, IDEPI +112 others
Posted by Janice Hicks ·

Untitled

This is a question from a department of Health policy staff member.  She has noted that there is a general lack of data on equity and it is of interest to many different parties.  Do any of you formally require/recommend that researchers include data on equity in their research?  

Comments & Events

Joni Koenig Joni Koenig
Our IRB used to do this as part of Continuing Review.  They would ask for a table summary of the enrolled/included participants, including: gender and limited race/ethnicity, if known.  However, with the phasing out of Continuing Review, we are losing this perspective and opportunity.

I have been considering requiring an annual status report in leu of Continuing Review where this information would be captured, including, if informed consent required, the breakdown of Spanish-speaking consent used vs. English-speaking.
 
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Robin Krause Robin Krause
You can have your Post-Approval Monitoring Tools ask these questions at the intervals indicated. 
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