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Becky Lampkins, Manager, Surveillance/Informatics Program at CSTEMegan Toe, CSTEScott Troppy, Surveillance Epidemiologist at MA DPHMeredith Lichtenstein, CSTEAmy Drake, NMJohn RobertsNancy Barrett, Epi 4/PH Informatics SpecialistErin Holt, TDHRita Altamore, EpidemiologistDavid DiCesareJason HallWalter Kemper, ELR Coordinator, NC DHHS Div of Public HealthJulie LuepkeCarmen Pugh, Labcorp Manager State Reporting at LabCorpTom Safranek +399 others
Posted by Riki Merrick ·

Adding Nullflavors to race value set

Follow up from the Open ELR call on 1/6/2022:
NHSN is reporting these 2 nullflavors in their race element:
Unknown and Declined to answer (this one is mapped to ASKU = Asked, but unknown from the V3 Nullflavor code system)
Currently the official PHINVADS valueset associated with PID-10 in the ELR specification does NOT include any nullflavor values (ethnicity = PID-22 does). PID-10 is RE in ELR, so if a value is unknown the field can be left blank.
However several labs, because they understand that race is an important element for EPIs, want to be able to demonstrate, that they asked the patient for this infomration, but the patient declined to state (or chose unknown).

How do state want to get this information from NHSN:
Leave PID-10 blank
Use ASKU^Asked but unknown^NULLFL

Comments & Events

Todd Davis Todd Davis
The reason IL wants this blank is because if there is a value there it lets our users off the hook and we want them to try and get the information rather than letting Unknown go. The ASKU is also not in our interface engine built in cross reference tables and it will not validate so again that is better to be left blank so it processes and our users try to get the info.
Todd
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Bill Storm Bill Storm
Ohio is not able to process ASKU from NULLFL table. Messages fail validation and are not processed, so we have to manually remove them from raw data files and redrop. We have asked AIMS Centralized ELR labs to stop sending it as it causes us extra work every day and delays in reporting. Blank would be fine if it's truly unknown or refused to answer. Or a simple |U| or |Unknown| would also work in PID-10. 
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Sita Smith Sita Smith
MA can handle either option
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Mike Firkser Mike Firkser
NJ can handle the ASKU – would prefer that to blank.


Thank you,

Mike Firkser
Technical Lead – Electronic Lab Reporting
NJ Dept. of Health/Health Information Technology
michael.firkser@doh.nj.gov
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Nancy Barrett, Epi 4/PH Informatics Specialist Nancy Barrett, Epi 4/PH Informatics Specialist
CT can handle either option
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David DiCesare David DiCesare
NY can handle either



Thanks.

David DiCesare
NYS ELR Coordinator
ECLRS Help Desk
Bureau of Surveillance and Data Systems
Local - 518-402-5943
Long Distance - 866-325-7743
David.dicesare@health.ny.gov
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Corinne Davis, HL7 Implementation SME Corinne Davis, HL7 Implementation SME
NH can handle either 
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Walter Kemper, ELR Coordinator, NC DHHS Div of Public Health Walter Kemper, ELR Coordinator, NC DHHS Div of Public Health
For NC Leave PID-10 blank

Walter Kemper
ELR Coordinator, NC EDSS Project
On behalf of State of NC DHHS Division of Public Health
Email: Walter.Kemper@dhhs.nc.gov<mailto:Walter.Kemper@dhhs.nc.gov>
(919) 426-3468 (mobile)
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Deb Loniewski Deb Loniewski
Michigan prefers to leave PID-10 blank.
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Deb Loniewski Deb Loniewski
Correction... add "U" for unknown.
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Riki Merrick, Terminologist at APHL Riki Merrick, Terminologist at APHL
HI Deb - What code system are you expecting when folks send U - the code for Unknown in the NULLFL code system is UNK.

Riki
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Deb Loniewski Deb Loniewski
Hi Riki,

Yes, thanks. You are correct. Here is what we require in PID-10 for Race values. I misspoke about leaving it blank too, since it is a required field.

VALUE
LABEL
1002-5
American Indian or Alaska Native
2028-9
Asian
2054-5
Black or African American
2076-8
Native Hawaiian or Other Pacific Islander
2106-3
White
2131-1
Other Race
UNK
Unknown


Thank you,

Deb Loniewski
Health Informaticist, MDHHS
Surveillance and Infectious Disease Epidemiology

Please note that I am working remotely due to COVID 19. I am fully accessible via email and can be reached by calling my cell phone.

P: 517 284-4952
C: 517-512-5252
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Ann Kayser Ann Kayser
For Minnesota: it's possible to receive if we update our routing, but we would prefer PID.10 be left blank.
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