Additional questions/considerations for this tool...
Who can answer or fill in the gaps for these questions/considerations?
What is the best way to present this to our toolkit audience? Is it a one-pager or is similar to a Frequently Asked Questions format?
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Crystal Snare
FAQ-style on a webpage, please _not_ another document download!
Remember that documents aren't search-friendly, so keeping information out of PDSs and DOCs helps for more than readability and accessibility for folks using alternative readers/etc!
I'm not sure what the first question means "Is there a significant difference in approach between jurisdictions with centralized vs. decentralized local public health networks public health?"
I suspect that jurisdictions would define themselves differently than we would for the purposes of eCR. (ie the only centralized one I can think of is IN, but I suspect you're thinking there are more!). Unless there are more self-identified centralized jurisdictions, I'd cut the question.
If you're referring to the "MI model" with the HIE actively participating in building case reports, or the WA-CDR alternative stream where we 'fish' out data from the CDR, I'd flesh that out in the question instead. If that's what you are referring to, I think we'll both face 'regular' eCR legal/admin issues with maintaining agreements as I think both of those proposals are _alternative_ proposals, so reword the question to "Does use of HIE or CDR repository impact need for additional or different legal agreements compared to traditionally decentralized eCR approach?" (??)
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Jim Collins
Hi Crystal,
Great comments
I think I fed this list a bit, so let me try to respond:
"Is there a significant difference in approach between juris-dictions with centralized vs. decentralized local public health networks public health?"
- I've heard a lot of comments around ownership of systems and ownership (read: responsibility) for data in the systems and how that might differ in differ locations. The question is, how does that impact on the legal agreements. I'm not able to respond to that beyond it might make a "one size fits all" solution more challenging. There are a number of "centralized" states, and the autonomy"y of local units in decentralized states varies some as well. Not to mention some larger local or regional jurisdictions that operate their own systems.
In terms of the different models.... I guess the approach was a bit awkward, but the attempt to bring that out without rocking the boat too much was in the fourth bullet.
Will it be necessary for public health agencies to negotiate agreements with every provider with whom they intend to exchange data? How can this impact be minimized?
Doesn't work? I just think that the commitment to negotiate agreements is substantial, but that leveraging existing agreements might be a way to lessen that burden.
Jim
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Crystal Snare
Jim,
Ah - I wasn't thinking 'home rule' when I read 'centralized' in the first question but centralized from a technology standpoint, which is why I thought of Indiana's structure. Perhaps mentioning 'home rule' or "Dillon's rule" states may help?
Your last question absolutely makes sense, and I got that reference. Sensitively worded too :-)
Thanks for the clarification! Crystal
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Jim Collins
Good Point Crystal,
How's about:
"Is there a significant difference in approach between jurisdictions with home rule vs. autonomous local public health units?" ?
Remember that documents aren't search-friendly, so keeping information out of PDSs and DOCs helps for more than readability and accessibility for folks using alternative readers/etc!
I'm not sure what the first question means "Is there a significant difference in approach between jurisdictions with centralized vs. decentralized local public health networks public health?"
I suspect that jurisdictions would define themselves differently than we would for the purposes of eCR. (ie the only centralized one I can think of is IN, but I suspect you're thinking there are more!). Unless there are more self-identified centralized jurisdictions, I'd cut the question.
If you're referring to the "MI model" with the HIE actively participating in building case reports, or the WA-CDR alternative stream where we 'fish' out data from the CDR, I'd flesh that out in the question instead. If that's what you are referring to, I think we'll both face 'regular' eCR legal/admin issues with maintaining agreements as I think both of those proposals are _alternative_ proposals, so reword the question to "Does use of HIE or CDR repository impact need for additional or different legal agreements compared to traditionally decentralized eCR approach?" (??)
Great comments
I think I fed this list a bit, so let me try to respond:
"Is there a significant difference in approach between juris-dictions with centralized vs. decentralized local public health networks public health?"
- I've heard a lot of comments around ownership of systems and ownership (read: responsibility) for data in the systems and how that might differ in differ locations. The question is, how does that impact on the legal agreements. I'm not able to respond to that beyond it might make a "one size fits all" solution more challenging. There are a number of "centralized" states, and the autonomy"y of local units in decentralized states varies some as well. Not to mention some larger local or regional jurisdictions that operate their own systems.
In terms of the different models.... I guess the approach was a bit awkward, but the attempt to bring that out without rocking the boat too much was in the fourth bullet.
Jim
Ah - I wasn't thinking 'home rule' when I read 'centralized' in the first question but centralized from a technology standpoint, which is why I thought of Indiana's structure. Perhaps mentioning 'home rule' or "Dillon's rule" states may help?
Your last question absolutely makes sense, and I got that reference. Sensitively worded too :-)
Thanks for the clarification!
Crystal
How's about:
"Is there a significant difference in approach between jurisdictions with home rule vs. autonomous local public health units?" ?